Parents Raise Awareness and Funds for Research to Combat Deadly Neonatal Disease

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Parents Band Together to Raise Awareness and Funds for Research on Deadly Neonatal Disease

Parents Sophie and Nathan Streeter endured a heart-wrenching loss when their son, Charlie, passed away at just eight weeks old due to necrotizing enterocolitis (NEC). NEC is a gut disease that affects a significant number of premature babies and is one of the leading causes of death among premature infants in Australia. Determined to prevent other families from experiencing the same tragedy, the Streeters have partnered with the Hudson Institute of Medical Research to raise awareness and funding for NEC research.

Led by professors Marcel and Claudia Nold, the researchers at the Hudson Institute are focused on conducting clinical trials to address the potentially lethal inflammation associated with NEC. According to Professor Claudia Nold, inflammation plays a central role in the disease and remains poorly understood. Their research involves blocking a protein called interleukin 1, which triggers the damaging inflammation. Initial safety trials have shown promising results using a drug currently used to treat rheumatoid arthritis in adults. Larger clinical trials involving up to 750 babies in multiple hospitals worldwide are planned.

In addition to studying inflammation, Professor Claudia Nold is also investigating the role of the gut microbiome in the development of NEC. By examining how NEC develops and exploring the possibility of using beneficial bacteria to treat the condition, she hopes to make further advancements in NEC research.

The grieving Streeter family is grateful for the opportunity to contribute to this vital research and provide support and information to parents of premature and low birth-weight babies. They believe that even small efforts to raise awareness and understanding can make a significant difference. Sophie and Nathan Streeter express their hope that, in the future, NEC will no longer claim the lives of newborns and that their daughter, due to arrive in April next year, will be born into a world where NEC is just a distant memory.

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The issue of NEC highlights the importance of ongoing research and the need for increased awareness and funding. By working together, parents, researchers, and medical professionals can strive towards eliminating this devastating disease and improving the outcomes for vulnerable infants. With continued dedication and support, there is hope that a treatment for NEC will be developed within the next five years, giving families like the Streeters the peace of mind they deserve.

References:
– [Original article](provide the link to the news article here)
– [Hudson Institute of Medical Research](provide the link to the Hudson Institute’s website here)

Frequently Asked Questions (FAQs) Related to the Above News

What is NEC?

NEC stands for necrotizing enterocolitis, which is a gut disease that primarily affects premature babies. It is one of the leading causes of death among premature infants in Australia.

How are parents Sophie and Nathan Streeter involved in NEC research?

Sophie and Nathan Streeter, who tragically lost their son Charlie to NEC, have partnered with the Hudson Institute of Medical Research to raise awareness and funding for NEC research.

What is the focus of the research being conducted at the Hudson Institute?

The researchers at the Hudson Institute are conducting clinical trials to study the potentially lethal inflammation associated with NEC. They are specifically looking at blocking a protein called interleukin 1, which triggers damaging inflammation in the gut.

What have the initial safety trials shown in regards to treating NEC inflammation?

The initial safety trials have shown promising results using a drug currently used to treat rheumatoid arthritis in adults. This drug has shown potential in reducing the damaging inflammation associated with NEC.

Are there plans for larger clinical trials to be conducted?

Yes, larger clinical trials involving up to 750 babies in multiple hospitals worldwide are planned. These trials will further investigate the effectiveness of the drug in treating NEC inflammation.

What other areas of NEC research is Professor Claudia Nold focusing on?

In addition to studying inflammation, Professor Claudia Nold is also investigating the role of the gut microbiome in the development of NEC. She is exploring the possibility of using beneficial bacteria to treat the condition.

How can parents of premature and low birth-weight babies benefit from the Streeter family's efforts?

The Streeter family aims to provide support and information to parents of premature and low birth-weight babies. Their efforts in raising awareness and understanding can help parents access valuable resources and potentially prevent tragedies related to NEC.

Is there hope for a treatment for NEC in the future?

Yes, with continued dedication and support, there is hope that a treatment for NEC will be developed within the next five years. This would greatly improve outcomes for vulnerable infants and give families peace of mind.

Where can I find more information about the Hudson Institute of Medical Research?

You can find more information about the Hudson Institute of Medical Research on their website. [Include link to the Hudson Institute's website]

Is there an original article about the Streeter family's efforts?

Yes, there is an original article available. [Include link to the original article]

Please note that the FAQs provided on this page are based on the news article published. While we strive to provide accurate and up-to-date information, it is always recommended to consult relevant authorities or professionals before making any decisions or taking action based on the FAQs or the news article.

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